Shivani Patel
January 2024
Shivani
Patel
,
BSN, RN, ELBW, NIC
NICU
Inova Fairfax Medical Campus
Falls Church
,
VA
United States

 

 

 

Shivani looked at me and said, “I am not going to give you false hope, but the truth is, we don’t know for certain what his future will look like, and your baby is fighting. You ARE allowed to fight with him. I will treat your baby like my own, and I will take care of him just like I would do for every other baby here if that’s what you want. Whatever you want, I’m here for you.”
I went into preterm labor at 25 weeks gestation due to a placental abruption. That’s 14 weeks earlier than any baby should be born. To say the labor and delivery was traumatic is an understatement. But I think the scariest part was not knowing what this meant for my baby. My son was immediately rushed to the NICU at IFMC. When babies are born as premature as my baby was, they are at risk for so many complications, amongst them are brain bleeds. Unfortunately, at just 3 days of life, I was given the devastating news that my sweet boy had suffered bilateral grade 4 brain bleeds. This diagnosis was worst case scenario and almost every person who walked into my baby’s room from then on, gave us no option and no hope for anything other than end of life treatment. It got so bad that I didn’t even want to visit him anymore because it felt like everyone wanted me to end his life although my baby was clinically stable and otherwise thriving. Everyone told me over and over again that this was a devastating and catastrophic diagnosis with no hope… except for Shivani. Shivani looked at me and said, “I am not going to give you false hope, but the truth is, we don’t know for certain what his future will look like, and your baby is fighting. You ARE allowed to fight with him. I will treat your baby like my own, and I will take care of him just like I would do for every other baby here if that’s what you want. Whatever you want, I’m here for you.” It finally felt like I had an option. Like I wasn’t being forced to just make an end-of-life decision. It felt like I was actually being allowed to give him a fighting chance. 6 days later, my baby was extubated and put on noninvasive respiratory support. He was thriving! Then, just like an angel, Shivani walked in as his nurse once again and asked me if I wanted to hold my baby for the very first time. Shivani actually told me she picked up an extra shift so that she could care for my baby again. She was meant to be there, and it was a moment I will never forget. Shivani was made for this. She is a light that every NICU parent, family member, and caregiver needs. She is what the world needs more of, and as a healthcare worker myself, I can only hope to be as genuine and kind as she is. I will always share the story of how she gave me hope in one of my darkest moments and because of her, my sweet boy made it home. Thank you, Shivani; Inova is so lucky to have you, and I am so grateful to have met you.